Families across the country celebrate their loved ones on Cornelia de Lange Syndrome Awareness Day
Last updated 5/11/2022 at 6:10pm
AVON, Conn. – Every year Cornelia de Lange Syndrome Awareness Day is observed on the second Saturday of May to shed light on the little-known genetic syndrome. Since1989, the CdLS Foundation and its community has celebrated Awareness Day across the nation. This year, CdLS Awareness Day will be held on Saturday May 14.
CdLS is a rare genetic disorder affecting 1 in 10,000 live births. The characteristics are a broad range of physical, cognitive and medical challenges. Parents, volunteers and others involved with the foundation make it their goal to educate individuals and groups in their...